As a member of Retina International, your organisation has access to up-to-the-minute information in scientific or clinical research, fundraising, advocacy, peer support, rehabilitation and a range of others, via our conferences and newsletters. The collective knowledge of such work can only be easily shared through the existence of an organisation dedicated to international co-operation and collaboration.
Endorsement via our membership qualification criteria and use of our logo are just some of the ways we deliver support to our members. We coordinate World Retina Day, provide internationally-agreed Scientific and Medical Advice, represent the voice of patients living with vision loss at multi-national organization level (EPF, EURORDIS, IAPO, EURETINA, ARVO etc) and add our weight to all endeavours consistent with our vision and mission.
Some appreciation of the extent of Retina International’s network can be gained through this website. This network, however, is as strong as the collective resources and commitment of our member organisations. Ultimately, it is the collective efforts of these national societies that will determine our progression towards achieving our mission; “to facilitate urgently the development, and ensure the world-wide availability and accessibility, of proven treatments and cures for Retinitis Pigmentosa, Macular Degeneration, Usher Syndrome, and allied retinal dystrophies”.
Canada – Fighting Blindness Canada
Finland – Retina Ry / Retina Finland
France – Association Retina France
Germany – PRO RETINA Deutschland E.V.
Iceland – Blindrafelagid – Retina Iceland
Ireland – Fighting Blindness Ireland
Japan – Japanese Retinitis Pigmentosa Society (JRPS)
Netherlands – Oogveregining Nederland
New Zealand – Retina New Zealand Inc
Norway – Retinitis Pigmentosa Foreningen I Norge
Pakistan – Pakistan Foundation Fighting Blindness
South Africa – Retina South Africa
Sweden – Svenska RP-Föreningen
Taiwan – Retinitis Pigmentosa Taipei
USA – Foundation Fighting Blindness
The Retina International Choroideremia committee – RI CHM, is a group of volunteer patient experts who work to connect satellite groups and organisations, as well as individuals and families affected by Choroideremia. The committee works towards building a better quality of life for people living with Choroideremia through the promotion of research and equitable access to emerging therapies.
The Retina International Usher Syndrome committee– RI USH, is a network of patient experts in Usher Syndrome who are affiliated to our national membership organistions. The network will act as a platform to support advocacy campaigns for the Usher community and to address the demand for up-to-date and reliable information on clinical trials and emerging therapies to all individuals with Usher syndrome, their families and associated medical professionals. You can read the RI-USH newsletters by clicking on this link: RI USH newsletters.
For more information about the Choroideremia or Usher Syndrome committees, please contact: avril.daly@retina-international.org
To learn about the different Retina International membership options and how you can apply to be a member, please read below:
To be a full member of RETINA INTERNATIONAL, a society must show that:
Special Interest Groups will represent regional or disease specific interest. The management of such groups must be drawn from management committees of the full members of Retina International. They must have a specific objective or a regional character and shall be approved by the Annual General Meeting.
Organisations wishing to apply for Membership shall apply in writing to RI by providing the following information:
A copy of their latest (audited) accounts.